The Schizophrenia Society of Ontario is marking 40 years of bringing schizophrenia and psychotic disorder awareness to the forefront and help to individuals affected by the illness in communities across the province.

The nonprofit’s communications manager, Ania Jones, says even today, schizophrenia and psychotic disorders remain insufficiently talked about and often feared.

“We have definitely moved the conversation further,” she said. “However, there is still a long way to go toward more acceptance and inclusion for those living with the illness.”

Schizophrenia is a mental illness that usually begins in the early adult years, typically — but not always — between the ages of 16 and 24.

It affects all genders equally and often starts with an episode of psychosis.

Jones said schizophrenia affects more than 140,000 people in Ontario.

“Symptoms, which are often described as ‘a break from reality,’ can include hallucinations, delusions, disorganized speech and feeling withdrawn or losing concentration and focus,” she said. “Everyone experiences symptoms differently and to a different degree.”

Jones said because schizophrenia is often misunderstood, someone who is diagnosed with the illness may be uncomfortable disclosing it or asking for support.

Given its complex nature and the lack of understanding around it, those impacted also may not fully understand what they’re dealing with and where to find help, she added.

“One of the biggest misconceptions is that it can’t be helped,” Jones said. “Schizophrenia is a serious but treatable mental illness. Despite the presence of symptoms or diagnoses, people can — and do — get better and live fulfilling lives.”

The Schizophrenia Society of Ontario each year helps nearly 10,000 individuals impacted by the illness through its free Ask the Expert counselling telephone helpline and other programs, resources and services available in communities.

The organization connects people to health and resources they may need or not be aware of how to find in their area. It offers counselling and educational and support groups for caregivers, family members, siblings and friends, for example, through its office in Hamilton.

Jones said the organization also helps those in need through advocacy with government to influence legislation and budgets to be supportive of key mental health needs.

“We are the largest provincial charity specializing in schizophrenia and psychosis-specific supports,” she said. “We feel the organization truly fills the gap where people often have nowhere to turn.”

Jones said we all have a part to play in increasing schizophrenia and psychotic disorder awareness and promoting inclusion for those living with the illness in the community.

It’s important to remember to focus on the person not the illness, she said.

“Learn all you can about the illness to share information and help dispel myths,” Jones said. “Respond to misinformation when you hear it and promote anti-stigma programs in your community and schools.”

Jones added that, while we know a lot more about schizophrenia than we did many years ago, there is still much to learn about the cause and cure.

“We know genetics plays a factor; we also know trauma and severe stress play a role as well, but the definitive cause of schizophrenia is not known,” she said. “So much more needs to be done to advance research and treatment to better understand schizophrenia and better support those impacted by it.”

For more information about the Schizophrenia Society of Ontario, visit schizophrenia.on.ca.

To find out more about programs, resources and services in Hamilton, call 905-523-7413.